Blood Clotting Disorders Support & Resources
Whether you're just finding out you or a loved one have a bleeding disorder or you're learning to live with this condition, you're going to need support. The important thing to remember is that you're not in this alone.
Our Support Systems
Coordinating care means more than just scheduling appointments. We want to make sure you have the accommodations and support you need to improve your quality of life. Together, these outpatient services emphasize prevention, independence, and long-term wellness, helping patients reduce complications while staying active and engaged in their normal routines.
Social Workers
Hematology social workers provide crucial psychosocial support, resource navigation, and counseling to patients with blood disorders and their families. They conduct assessments, assist with financial and insurance issues, and coordinate care to help manage the emotional and practical demands of treatment.
Our social worker understands family concerns and provide assistance with many issues, including:
- Advanced directives
- Barriers to discharge or treatment
- Behavioral problems
- Chronic illness
- Communication
- Concrete resources and assistance
- Coordination of facility transfers and specialized transportation
- Counseling
- Cultural differences
- Ethical considerations
- Family issues
- Financial issues
- Housing problems
- Patient advocacy
- Referrals to community resources
- Substance abuse
- Violence in the family or community
- Insurance coverage/Insurance concerns
Contact our pediatric social worker, Leah Willey
Contact our adult social worker, Melissa Broadley
Physical Therapy
Physical therapy is a cornerstone of care for people living with blood clotting disorders. Not only is it helpful in recovery after a joint bleed, but physical therapists can also work to help build balance and stability to prevent accidental falls that can lead to bleeds. If not managed correctly, joint bleeds can lead to chronic pain.
We'll work with you on your concerns, and design an individualized plan that helps you meet your physical therapy goals.
Specialty Care for Your Needs
For children newly diagnosed, a geneticist can help provide counseling and testing to shape a care plan. By knowing more detailed specifics about why your body is facing these challenges, we can also help determine the shape of the disease course.
Registered dietitians can help with diet recommendations to address concerns like blood and bone health. While general nutrition guidelines are created with an average adult in mind, tailoring these recommendations based on the unique needs of your body can help you to feel your best.
We can also provide education on home infusions, prophylactic treatment plans, and guidance on how to respond to emergent situations.